Comments on Arthritis Mom: Leave My Hair Alone

Jennie,
I completely can understand what you ar...

2009-01-27T17:12:00.000-08:00

Jennie,
I completely can understand what you are going through~ I have Systematic Lupus and Sjogrens disease and I have the form that has effected my joints...so I have been on methotrexate and experienced it's wonderful side effects~ The hair loss, migraines , nausea..ect. But through it all I try to remind myself that if it were not for the medications I would not be able to have any kind of life. And my faith has been substantial in maintaining a healthy outlook. Stand strong and remember that even on your bad day...and I know because I have a lot of them ~ they are better than those who do not have the means of getting the help we have.
Blessings,
Vikki Goedmakers

44mom - I have not heard that side effect from jus...

2008-09-13T09:01:00.000-07:00

44mom - I have not heard that side effect from just taking Enbrel but it could be stress too. I would ask your doctor, it could be something other than the Enbrel.

I am on Embrel but no methotrexate and have just n...

2008-09-13T04:54:00.000-07:00

I am on Embrel but no methotrexate and have just noticed alot of hair loss. Is there anybody that is on just Embrel with this problem?

I also experienced hair loss/thinning of hair with...

2008-09-08T07:30:00.000-07:00

I also experienced hair loss/thinning of hair with methotrexate and some concern of liver damage. My rheumatologist wasn't very sympathetic but my naturopath was able to give me a supplement that helped. Once I went off methotrexate, the hair filled right back in. Cathy

Mrs. Modecai - I agree in a perfect world no side ...

2008-08-28T18:54:00.000-07:00

Mrs. Modecai - I agree in a perfect world no side effects. Or in a perfect world no RA!

I won't lie, I hate my hair falling out. But it's...

2008-08-28T18:50:00.000-07:00

I won't lie, I hate my hair falling out. But it's not the worst symptom you can have. I haven't lost all of it and before I stopped to get pregnant I was on Methotrexate for three years. After about a year the hair loss slowed down. I just went back on Methotrexate earlier this year and the hair loss only just now picked up. I have long hair too and have not cut it shorter, I don't think it being long makes it worse.

The big thing for me is that a bit of hair less is better than a lot of irreversible joint damage. It's not fun, but it could be worse.

Hi! I found your site while researching Methotrexa...

2008-08-28T14:12:00.000-07:00

Hi! I found your site while researching Methotrexate and hair loss. My RA doc wants to start it because Plaquenil is just not cutting it anymore. I am really concerned about how much hair I may lose. I fear huge patches coming out. I have shoulder length hair and wonder if I should just go short to minimize the effect.

Any advice would be greatly appricated. You can also email me at seekingsolaceblog@gmail.com

I have to admit that one of the things that scares...

2008-08-15T11:04:00.000-07:00

I have to admit that one of the things that scares me most about having arthritis is having to take drugs, and their side effects. I don't want to gain weight and lose my hair and be dizzy and headachy and whatever else comes with it! I really am grateful for the drugs . . . just, well, I guess in a perfect world, there would be no side effects!