This morning I woke up and immediately had the image of being on a roller coaster. I was at that point where even though you love roller coasters, you are screaming "noooooooo" and wishing you had not gotten on the ride that day.
I never really know how it's going to go. If I have a few great days and then a not-so-great day, will the following day be better or will I head toward an RA flare? It's a little like riding that roller coaster blind, not sure where the drop-offs are or when it is going to end. That's the most thrilling way to ride the roller coaster, but the scariest too. I'd bet most people want to know what's coming next.
When I woke up today, in addition to my foot that was hurting yesterday, I also had pain in one knee and in my elbows and hands. Once I was up and moving all my joints did start to feel better. The fatigue was probably the worst part of the day. Now at the end of the day nothing is hurting too much and the fatigue is mostly gone too. Time to go to sleep and see what tomorrow morning brings.
Posted by
Jennie
on
September 14, 2008 at 10:52 PM
Categories:
Coping
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3 comments:
I know what you mean...it's always a surprise. And I hate surprises.
And when someone asks "How are you?", I always wonder if I should say "Fine" or really tell them! I hate to tell anyone (even my husband) how I'm really feeling because then I feel like such a whiner. I don't know how you do it with 6 kids! That's something to be admired.
It's tough when you wake up in pain wondering if you are going into flare. I have that problem during this time of year as the weather changes to fall.
Just found your blog. I am mom of 2 and just diagnosed with RA after the birth of my son. He is now 6 weeks old and born premature - severe preecamplsia - possibly due to the onset of RA. My sister also has RA and so I knew some about it before this. Now I really know... but having dealt with this for less than 2 months so far the pain management is very new to me. Getting up with a premature 6 week old in the middle of the night is especially challenging.
Reading through some of your posts your words and thoughts really resonate with me. Just wanted to say Thank You and Ill be hangin around here a bit!
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