Posted by Jennie on May 09, 2008 at 6:18 AM
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I was searching around for information on the age people typically get rheuamtoid arthritis for this blog post, and I found this which I did not know: "RA develops more often than expected the year after giving birth."

Well that certainly explains a lot! I knew that 75% of women with rheumatoid arthritis go into remission during pregnancy and that it typically comes back like a train wreck a few weeks or months post-partum. My rheumatoid arthritis did not go into remission although I had a fairly easy first trimester and I did get a break for a few weeks after the births. I did not know the train would keep popping and running me over for a year or so.

I take some comfort in knowing this is common. It means I'm not the only one, and that always feels good (sorry for those of you who have to suffer along with me). And because it says "in the first year after birth" it means that at some point in the not too distant future I can go back to my normal RA life health where the drugs do their job.

What I was going to post about, before I found that tidbit above, was a request. I am throwing this out there to anyone who wants to take up this cause. As the population ages there are more and more gadgets on the market that help with daily living when you have difficulty gripping, doing housework, preparing meals, etc. You know, all those Good Grips products. Because rheumatoid arthritis can hit women of childbearing age, I think we need a line of arthritis mom friendly products. Here's my initial list.

Arthritis Mom Wish List

Diaper changing machine or at least something to keep the babies from kicking me in the wrist and wrangling away while I change their diapers. It ends up looking like I'm on the losing side of a wrestling match. If I can't have a machine, then something to keep them from flipping over and trying to get away. And perhaps something to keep one baby from rolling over and smacking the other baby or from putting a foot in the other one's dirty diaper. If not that, then at least something to squeeze the diaper cream for me, perhaps something that would also work on my shampoo bottle.

Automatic snapper for those tiny snaps on baby clothes. Until this one is invented I've started snapping every other snap on bad RA days.

Robot arm to lift babies out of the crib on bad RA days. Some people worry about their kids learning to crawl out of the cribs themselves, this arthritis mom is look forward to that day.

Infant car seat release to help me remove the seats from the base without having to simultaneously squeeze hard, pull and lift over 20 lbs in an awkward position. I need something that fits in my pocket or is attached to the seat. Right now my coping mechanisms are called Husband and Stepsons but it's hard to take them everywhere I need to go.

Adjustable shoes. I know they exist. But I'm 37 years old, I need attractive shoes. I don't want shoes that look like my grandma's slippers, and I'd like buy them without having to take out a loan first. An area they specifically need to expand is the bottom - what is up with the inside/bottom of the foot swelling anyway, it's incredibly bothersome.

Most importantly, I really need medicine bottles that the kids can't open but that I can.

5 comments:

raandme said...

I think you are amazing! I can't imagine doing what you do with R.A. And it's always good to read about someone who is still accomplishing so much, even if it is difficult :)

Anonymous said...

Thank you so much for your post. I myself am young mom with a 2 1/2month old baby. I was diagnosed at 18years old and always hoped things would get better..that I would one day be cured. During my semi remission during pregnancy, I was excited! Finally a bit of relief! Now that my beautiful baby daughter is here, it came back "like a train wreck". Everyday is a challenge and although I feel it is worth it due to my love towards my child...there are days I want to bury my face in my swollen hands and cry. I love your invention ideas and I hope someone comes up with something soon! Thank you for putting a smile on my face!

Anonymous said...

Thank you for your invention ideas! I think they are great and worth looking into. I am a 32year old mother of a 2 1/2month old infant and can totally relate to the struggles of daily life. I love my baby with all my heart, but there are days I bury my face in my swollen hands and cry from frusteration! I was diagnosed at 18 years old with the condition and always thought it would somehow go away. The day hasn't come and now I realize it may never, but keeping a sense of humour I find is the key.

Lisa said...

Lovlee4645@aol.com

I would love to chat with you. I am 14 weks pregnant and cry all the time when I think about the snaps and car seats. Hadn't even thought of the diapers. Why can't I find clothes with velcro. I saw one jumper at the 99 cents store and wish I had bought hundreds. How do you do it and what advice could you give me on products that may have been easier for you.

Best of Luck Lisa

Jennie said...

Hi Lisa:

I haven't really avoided snaps, velcro clothes sound like a good idea let me know if they work out. I have good days and bad days, on the bad days I curse the little snaps and on good days it's no big deal. Hopefully you will have lots of good days and help when you need it. I think it's smart to keep an eye out for products that will be easier to use, I think if I just couldn't do the snaps at all I'd be online looking for velcro closures! I can sometimes grab the clothes with a full fist instead of the ends of my fingers, that helps with getting them off.

One thing you should do is not worry too much, cross that bridge when you get there. And when you do, you'll find a way to make it work and hopefully others like me online to vent your frustrations to so you know you aren't alone.

Best of luck with your new bundle on the way.

Jennie